Gosh, another month has passed so quickly. Our Virtual Coffee Breaks have been amazing this month and we’ve had so many new members come along and join in.

We’ve discussed a lot of topics, and the support we have for each other is invaluable to everyone. One of the topics we were discussing was B12 vitamin deficiency and if it’s linked to myelopathy. Many of us have not been informed about how our diet can affect our condition.

We’ve all seen the ads on social media telling us their products can cure us. Please do not buy any of these fake products!

Why are people not informed that diet can help manage myelopathy? Well, it could be the lack of awareness. Many healthcare providers might not be fully aware of the potential benefits of dietary interventions for myelopathy. They focus more on conventional treatments like surgery, medications, and physical therapies.

There may be limited research specifically linking diet to the management of myelopathy symptoms. While general dietary advice for overall health is well-established, specific dietary recommendations for myelopathy may not be as thoroughly studied or validated. They tend to focus on immediate treatments as myelopathy often requires urgent medical intervention to prevent further neurological damage. In such cases, immediate treatments like surgery or medications are prioritised over lifestyle changes, including diet.

Myelopathy is a complex neurological condition, often involving multifactorial causes and symptoms. The impact of diet on such a condition can be difficult to isolate and measure, leading to a lesser emphasis on dietary advice.

And finally, patient compliance. Dietary changes can be difficult to implement and maintain, especially for patients already dealing with significant health issues. Healthcare providers might prioritise treatments that are easier to monitor and ensure compliance.

To the Myelopathy Warriors, us! We need to understand which vitamins and supplements could help us keep our condition under control, along with any treatments like surgery, medications, and physical therapies.

Understanding the Role of Vitamins

Below are some of the key vitamins and supplements for myelopathy:

Vitamin B12

Vitamin B12 is crucial for maintaining healthy nerve cells and red blood cells. Deficiency in B12 can lead to neurological problems and exacerbate myelopathy symptoms. Foods rich in B12 include fish, meat, poultry, eggs, and dairy products. For those with a deficiency, B12 supplements or injections may be necessary.

Vitamin D

Vitamin D is essential for bone health, and adequate levels can help maintain the structural integrity of the spine. Low levels of vitamin D have been associated with increased pain and disability in individuals with spinal conditions. Sun exposure, fortified foods, and supplements are common sources of vitamin D.

Omega-3 Fatty Acids

Omega-3 fatty acids, found in fish oil, flaxseeds, and walnuts, have anti-inflammatory properties that can help reduce spinal inflammation associated with myelopathy. Supplementing with omega-3s can support nerve health and potentially ease pain.

Vitamin E

Vitamin E acts as an antioxidant, protecting cells from damage. It can support nerve health and reduce oxidative stress, which is beneficial for individuals with myelopathy. Nuts, seeds, and green leafy vegetables are good sources of vitamin E.

Magnesium

Magnesium is involved in over 300 biochemical reactions in the body, including nerve function. It can help with muscle relaxation and may alleviate some symptoms of myelopathy. Foods rich in magnesium include almonds, spinach, and black beans. Supplements can also be considered if dietary intake is insufficient.

Alpha-Lipoic Acid

Alpha-lipoic acid is an antioxidant that has been shown to reduce nerve pain and inflammation. It can be particularly useful in managing neuropathic pain associated with myelopathy. Dietary sources include spinach, broccoli, and potatoes, though supplements are often recommended for therapeutic doses.

Turmeric

Turmeric – particularly its active component curcumin – has been studied for its potential anti-inflammatory and antioxidant properties, which could be beneficial for various health conditions, including myelopathy. Studies suggest curcumin can support nerve regeneration and repair, potentially aiding in the recovery of spinal cord.

Combining Diet and Supplements

While supplements can be beneficial, obtaining nutrients from a balanced diet is always the best approach. A diet rich in fruits, vegetables, lean proteins, and healthy fats can provide a wide range of essential nutrients to support spinal and overall health.

But you must consult with  your healthcare provider.

Doctors often do not emphasise the role of supplements and vitamins in treating myelopathy because the primary focus is on evidence-based treatments that have been rigorously tested and proven effective through clinical trials. Currently, the research supporting the use of supplements and vitamins for myelopathy is limited and inconclusive.

Physicians prioritise treatments with strong scientific backing to ensure patient safety and efficacy. Furthermore, myelopathy often requires medical interventions such as surgery, physical therapy, or prescription medications, which are critical for managing the condition and preventing further neurological damage. Without robust evidence, recommending supplements and vitamins might divert attention from these essential, proven therapies.

It is crucial when starting any new vitamin or supplement regimen to consult with a healthcare provider/GP. They can provide personalised recommendations based on individual health needs and ensure there are no interactions with existing medications or conditions.

Vitamins and supplements can play a supportive role in managing myelopathy by promoting nerve health, reducing inflammation, and maintaining spinal integrity. Incorporating a balanced diet along with targeted supplementation, under the guidance of a healthcare provider, can help improve symptoms and quality of life for individuals with myelopathy.

Remember, while vitamins and supplements can aid in managing myelopathy, they should be part of a comprehensive treatment plan that includes medical, physical, and possibly surgical interventions.

Does anyone else know of any other supplements that can help us control our condition?

We discuss so much on our Coffee Breaks, and if you feel you want to connect, please join the Support Group on Facebook, where you will find the dates and links.

I hope to see you there,

Esther