The Myelopathy.org Support Group on Facebook was created in December 2015 by Iwan Sadler. It was started due to the feedback from and the success of the Myelopathy.org Facebook Page. The people living with Degenerative Cervical Myelopathy (DCM) needed a private platform so that they could openly talk about their issues; the Myelopathy.org Facebook Page was not the correct platform to provide that.
The Myelopathy.org Caregivers Support Group on Facebook was created in January 2023 by Kevin Moore. It was so important for us to make sure the caregivers can openly talk to each other and also give them the help and support they also need. This project had always been on the back burner waiting for the right person to take this project forward. We believe Kevin, with his background in counselling and having a partner with myelopathy, makes a great ambassador for this role.
Our Facebook Groups are private.
They are run by volunteers from the DCM community. Please contact Iwan if you are interested to help out!
The group members consist of primary stakeholders. This includes people living with DCM, people waiting for a possible diagnosis of DCM, and the carers of people with DCM. Membership is international.
Membership requires the applicant to answer two questions. The admins/moderators will review the answers and membership request is accepted or denied accordingly.
Our Support Groups have certain rules created by the Admins that all members need to follow.