Welcome to Myelopathy.org

Myelopathy.org is the first global scientific and clinical charity dedicated to positively transforming patient outcomes in Degenerative Cervical Myelopathy (DCM).

We are dedicated to improving the outlook for people with DCM around the world, through scientific and clinical research, education, and collaboration with patients and the wider myelopathy community. Our community includes people with lived experience of the disease, the people who care for them, and the health professionals who treat them. We have a very active Support Group on Facebook, for people with DCM, run by people with DCM.

Our mission is to raise the awareness of DCM globally. You can help us to measure our impact by providing your details. Sign up to hear news relevant to the whole DCM community.

Together we will create a world where people live their lives free of the pain, terror and isolation of DCM with immediate diagnosis, timely treatment, and wrap-around patient-centred support.

Make a Donation

Degenerative Cervical Myelopathy (DCM) is an under-recognised, progressive and disabling condition. It is caused by wear and tear of the spine in the neck, which results in compression and injury to the spinal cord. This has severe consequences throughout the body. As the world’s population is getting older, incidence is increasing. Currently, approximately 2% of adults are affected. 

Donate now to transform the lives of millions of people living with the daily challenge of pain, disability and isolation. Invest in a future free of ignorance and pain for the global DCM community through new treatments, quicker diagnosis and wrap-around support.

The Lancet Quote Final

#MyelopathyMatters

What is DCM?

Have you or know someone who has been recently diagnosed with DCM?​

Support Group

Myelopathy.org and its community are here to help you.

Professionals

Are you a health professional looking for information about DCM?

Blog

Interview with Brett Seagrave

Can you tell us a bit about yourself?      I’m a 46-year-old Executive Head Chef. I currently live with my partner, Danielle (Danni), in Lincoln UK.

AO Spine RECODE-DCM

Quarterly Newsletter, June 2022 AO Spine RECODE-DCM aims to accelerate research to improve outcomes in DCM. By bringing those who live with DCM together with

Coffee with Esther (July 2022)

Hello again!  Well, June’s coffee breaks were another success, with more new members joining each week. News is traveling fast about our new adventure and

2021-2022 Annual Update

July really feels like the beginning of summer proper. In the UK, schools are winding down towards the end of the school year which signals