Welcome to Myelopathy.org

Myelopathy.org is the first global scientific and clinical charity dedicated to positively transforming patient outcomes in Degenerative Cervical Myelopathy (DCM).

We are dedicated to improving the outlook for people with DCM around the world, through scientific and clinical research, education, and collaboration with patients and the wider myelopathy community. Our community includes people with lived experience of the disease, the people who care for them, and the health professionals who treat them. We have a very active Support Group on Facebook, for people with DCM, run by people with DCM.

Our mission is to raise the awareness of DCM globally. You can help us to measure our impact by providing your details. Sign up to hear news relevant to the whole DCM community.

Together we will create a world where people live their lives free of the pain, terror and isolation of DCM with immediate diagnosis, timely treatment, and wrap-around patient-centred support.

Make a Donation

Degenerative Cervical Myelopathy (DCM) is an under-recognised, progressive and disabling condition. It is caused by wear and tear of the spine in the neck, which results in compression and injury to the spinal cord. This has severe consequences throughout the body. As the world’s population is getting older, incidence is increasing. Currently, approximately 2% of adults are affected. 

Donate now to transform the lives of millions of people living with the daily challenge of pain, disability and isolation. Invest in a future free of ignorance and pain for the global DCM community through new treatments, quicker diagnosis and wrap-around support.

#MyelopathyMatters

What is DCM

Have you or know someone who has been recently diagnosed with DCM?​

Support Group

Myelopathy.org and its community are here to help you.

Professionals

Are you a health professional looking for information about DCM?

Blog

  • RECODE-DCM logo

    RECODE-DCM Newsletter Highlights (January 2023)

    Thank you for being part of the RECODE-DCM community Myelopathy.org, the first global scientific and clinical charity dedicated to positively transforming patient outcomes in Degenerative Cervical Myelopathy (DCM), welcomes you to RECODE-DCM, the research arm of the charity. DCM is the world’s number one cause of spinal cord injury in adults, but awareness among healthcare professionals and the general public is shockingly low. RECODE-DCM acts as a think tank, bringing together people living and working with DCM to raise awareness and solve key questions in this under-served, slow-motion spinal cord injury.  Our mission is to improve the outlook for people with…
  • luiz vialle award medal

    Dr Benjamin Davies Receives 2023 Luiz Vialle Award

    Named after the founder of the AO Spine Knowledge Forums (KF), the international Luiz Vialle Award recognizes young practitioners for their contributions to the field of spine research and knowledge dissemination to improve patient care and outcomes in spinal disorders. Join us in congratulating our very own Dr Benjamin Davies, the recent recipient of a 2023 AO Spine Luiz Vialle Award. Specifically, each year these awards are given to associate members of the five Knowledge Forums (KF), which are AO Spine’s international study groups in the areas of spine tumor, deformity, trauma, spinal cord injury, and degenerative disease.  Here Ben…
  • Coffee with Esther (January 2023)

    New Year, New Me, Living with Myelopathy  Hi All, Happy New Year to everyone! I hope you all enjoyed the festive period and your myelopathy didn’t stop you from getting together with family and friends. I wanted to take some time to reflect back on my journey.  So far, it has been a difficult path. I have felt lost and lonely many times. In the beginning, I really struggled with losing my identity. I found it so hard to admit that in my 40’s, I was no longer able to work. Nobody would employ me with this condition, and I…
  • Happy New Year 2023!

    A very warm welcome to the new year to all of you! 2022 has been a year that’s been difficult and challenging for so many. A constant for me, and I hope for many of you too, has been the support of the Myelopathy.org family.  I hope that this year, we can push ourselves further, and achieve everything we set out to do. I hope that if we are unable to do so, that we are kind to ourselves, and learn from our setbacks.  From all of us at Myelopathy.org, we look forward to another year together with you all!…