RECODE-DCM
Welcome to RECODE-DCM, the Research Arm of Myelopathy.org
RECODE-DCM stands for “REsearch objectives and COmmon Data Elements for Degenerative Cervical Myelopathy”.
RECODE-DCM acts as a think tank, to accelerate the acquisition and implementation of knowledge that can improve outcomes. The participants are Myelopathy.org’s community of people with DCM, alongside world leaders from diverse stakeholder groups: general practitioners, bench scientists, medical students, physiotherapists, osteopaths, occupational therapists, surgeons, healthcare economists, politicians, and more. This combination of lived experience and professional experience gives RECODE-DCM unique relevance and power.
RECODE-DCM started in 2019 as a consensus project to improve research efficiency in DCM [1]. It was conceived by Principal Investigator, Dr Mark Kotter, and Co-Principal Investigator, Dr Benjamin Davies.
The AO Spine Spinal Cord Injury Knowledge Forum, Chaired by Dr Michael Fehlings, recognised the huge global burden of DCM. AO Spine therefore provided funding to kickstart the initiative, for which we are forever grateful.
Dr Michael Fehlings Articulates the Problem
The group recognised that existing DCM research had many shortcomings:
RECODE-DCM addressed these shortcomings by:
Watch the Video to Understand the Evolution of RECODE-DCM
None of this work would have been possible without the insight, dedication and support of AO Spine, in particular the members of their Spinal Cord Injury Knowledge Forum and their Senior Project Manager, Olesja Hazenbiller.
AO Spine kindly supported the creation of videos and podcasts with our partners at Cambridge TV, to share the important messages of RECODE-DCM with a global audience.
AO Spine kindly supported the creation of videos and podcasts with our partners at Cambridge TV, to share the important messages of RECODE-DCM with a global audience.
