Visit Us On FacebookVisit Us On TwitterVisit Us On InstagramVisit Us On YoutubeCheck Our Feed


Press Releases and Charity Information is a not-for-profit worldwide charity, registered in 2018, promoting collaborative working between researchers, clinicians and healthcare professionals; providing information and support to people diagnosed with DCM; and raising awareness of the condition globally.

It is the only charity and website in the world solely dedicated to DCM and offers a unique portal for professionals and patients to come together.

Charity Trustees include: Dr Mark Kotter, Lady Julia Carter, Weslie Janeway and Dr Johann Graggaber. 

Below are’s press releases, detailing important new information or exciting research findings.

Find out more about the team

Get in Touch

If you’re a member of the Press and wish to speak to someone to find out more about Myelopathy, the Charity and the work we do, please contact Delphine Houlton, Public Relations at