Category People with DCM

Coffee with Esther (July 2024)

Gosh, another month has passed so quickly. Our Virtual Coffee Breaks have been amazing this month and we’ve had so many new members come along and join in. We’ve discussed a lot of topics, and the support we have for…

Guest Blog – Helen’s DCM Story

Hi, my name is Helen. I live in Gloucestershire. I have been involved with Myelopathy.org for a couple of years and am the person who has been printing and packaging the new stationery items on the Myelopathy Shop, but more…

Coffee with Esther (May 2024)

As May unfolds, we find ourselves amidst Myelopathy Awareness Month, a time to shed light on the challenges and triumphs faced by individuals grappling with this condition and to amplify the voices of all affected by it. This month, Esther’s…

Myelopathy Musings: Walking Towards Healing

winter sunset over the sea

Amidst the recent struggles with my condition, a blend of January blues and the biting cold weather, my IBS has become an unrelenting companion. The aftermath of festive indulgence served as a stark reminder that my digestive system rebels against…

Coffee with Esther (April 2024)

Stepping into the Night On the Coffee Breaks this month we’ve been talking about what activities we’d love to try or do again and people wanted to try many types of things! Doing something you’re passionate about infuses your life…

Guest Blog – Gillian’s DCM Story

Part 1: Who Am I? My name is Gillian and I have lived independently with various cats and a very high-maintenance garden for over 30 years. I had my DCM surgery in 2024. My Backstory  I retired early in 2010 at…

Coffee with Esther (March 2024)

Overcoming Invisible Loneliness It’s so great that the Coffee Break group is providing support and addressing the challenges of loneliness and isolation due to myelopathy. Sharing feelings and discussing coping strategies like meditation and mindfulness can make a significant positive…

Interview with Karen Johnson

This month we’re taking a departure from our usual Q&A-style format. We’d like you to meet Karen Johnson, the newest member of the Support Group admin team. Karen’s story adds to the diversity of experiences within our community and the…

A DCM Recovery Story

water lily

“There is flattening of the anterior cord surface with possible early increased T2 signal particularly at C4-5 raising the possibility of myelopathy. Bilateral foraminal narrowing is also demonstrated. Advanced degenerative changes at C2-3 and in the lower cervical region.” So…