On 29 April 2022 our Chair of the Board of Trustees, Helen Wood, met with Dr Rory Murphy, a Myelopathy.org Ambassador. Helen was travelling with her husband to Phoenix, Arizona, USA. She decided to take the opportunity to see Rory. It…
Hi everyone, it’s Liz here again, with the latest installment from the AO Spine RECODE-DCM project! It has been an exciting past few weeks. The third and final consensus meeting took place on 1 June 2022 at the Global Spine…
May is such a beautiful month. It’s the start of warm weather. Birds making their nests in the trees. Flowers start to grow again as they get ready for summer. The Virtual Coffee Breaks have also grown and blossomed over…
Hi I’m Iwan, co-founder of Myelopathy.org. Since being diagnosed with myelopathy in 2014, I’ve had many conversations regarding this condition. But one phrase, in particular, pops up in the Support Group regularly and I’ve also heard it mentioned in the…
Tell us a bit about yourself. Hi, my name is Sheila Dugan and I live in Florida, USA. I have four grandchildren and try as I may, this Grammy can’t seem to keep up. I love to travel. As a…
Hi Everyone, April’s Virtual Coffee Breaks have been very enlightening, with loads of topics covered. One of the topics we talked about was hobbies. So, here’s a question for you: “Why do we feel guilty about having a hobby when…
Dearest Reader, My name is Lady Whistledown. Just kidding, my name is Carol. I am one of the trustees, overseeing the branding, communications, and marketing for Myelopathy.org. One of our goals for the new website is to give you the…
Hi, Liz here! I’m a science communicator with a background in physiology and neurobiology. I first met the charity’s founders Dr Mark Kotter, Dr Benjamin Davies, and Iwan Sadler back in 2016 while partnering with Cambridge TV to make the…
I’m excited to introduce you to Esther Martin-Moore. She is a member of our Support Group and came up with the idea of running a Virtual Coffee Break within the Support Group. These have been such a great success that…
The greatest challenge facing those with degenerative cervical myelopathy is understanding and expressing their symptoms and to have a medical practitioner recognize and diagnose the condition early. In my experience neck pain is most often the earliest symptom patients can…