Coffee with Esther (November 2022)
We Are All in This Together Hi All, This month has not been the greatest month for me. I am currently struggling with some new symptoms which are making me feel very low and tired. For those of you that…
Category Faces of Myelopathy
Welcome New Team Members!
Though the end of the year is fast approaching, there is lots happening here at Myelopathy.org. We have recently welcomed new members to our team – each of them just as passionate about the cause as we are! Xiaoyu Yang…
Interview with Iwan Sadler
What is your name and where do you live? Hi, I’m Iwan Sadler and I live in a Welsh seaside town in the UK called Llanelli. Can you tell us a bit about yourself? I’m 52 and have four…
Coffee with Esther (October 2022)
Mind, Body and Relief! Hi Everyone, It’s been an emotional month for everyone. With the nights drawing in and the weather getting colder, it’s time for a lot of us to come inside away from the cold weather. During the…
World Spine Day
October 16th marks World Spine Day, which aims to highlight the burden of spine pain, which is the biggest single cause of disability globally. Celebrated all over the world, it draws attention to an estimated one billion people who suffer…
Interview with Zahabiya Karimi
What is your name and where do you live? Zahabiya Karimi and I live in Sawston, Cambridge. Can you tell us a bit about yourself? I’m originally from Karachi, Pakistan, and I moved to Cambridge from London after I got…
Coffee with Esther (September 2022)
An Interview with Lynne Gordon and Jennifer Lamb Hi All, I hope you have had an amazing summer. The weather has been very kind to a lot of us. For some, this has meant it’s either been too hot, or…
Interview with Brett Seagrave
Can you tell us a bit about yourself? I’m a 46-year-old Executive Head Chef. I currently live with my partner, Danielle (Danni), in Lincoln UK. I am currently training to run the Lincoln City Half Marathon on 18th September 2022.…
AO Spine RECODE-DCM
Quarterly Newsletter, June 2022 AO Spine RECODE-DCM aims to accelerate research to improve outcomes in DCM. By bringing those who live with DCM together with those who treat it, our international multi-disciplinary collaboration is closing knowledge gaps. AO Spine RECODE-DCM…
Coffee with Esther (July 2022)
Hello again! Well, June’s coffee breaks were another success, with more new members joining each week. News is traveling fast about our new adventure and this month we saw many new people joining us from all over the world. So…