A Message from Everyone at Myelopathy.org

We are living in unprecedented times which is making many of us feel quite scared, nervous and anxious about our health as well as that of our families and friends.

We wanted to reassure you that Myelopathy.org is run by a dedicated group of volunteers based all around the UK and therefore we are used to working with each other remotely. This means that during these uncertain times we can continue to work together in the way we are used to around our various family and other commitments, to raise awareness of Cervical Myelopathy. That said, due to the current situation many of these activities will likely slow in the weeks and months to come, or will be postponed.

In the meantime, keep talking to each other on our support group, keep in touch with your family, friends and neighbours, and lean on them for help and support. Stay positive, and try to meet people for a virtual cup of tea online instead. Please don’t suffer in silence, we’re here for you.

If there is a question we can help with, get in touch and we will try to seek some clarity for you.

Stay safe, with very best wishes,
Everyone at Myelopathy.org

Stay positive and enjoy this beautiful wildflower meadow in the summer photo
Photo by Kristine Cinate on Unsplash

One comment

  1. Hello there, Carol

    I would like to second that sentiment. we are definitely here for you – feel free to drop by Myelopathy Support on Facebook if you need some support from the people who truly “get it” – those living with myelopathy.https://www.facebook.com/groups/myelopathy.support/

    If you are considering joining the support group if you haven’t already, do remember to answer the 3 questions we pose, lest being declined disappoints. Similarly the same applies if you invite family or friends to the group.

    If you are not a member of FaceBook, because you prefer to stay anonymous, then we also have a Cervical Myelopathy forum on HealthUnlocked which is staff by the admins & mods from FB – here’s the link: https://healthunlocked.com/myelopathy-support

    These are unprecedented times – the future is scary enough without having Degenerative Cervical Myelopathy to contend with on top. So do pop by if you need some moral support.

    If you find yourself struggling to cope with the current situation – do not be afraid to reach out to your GP or family doctor to tell them how you feel.

    There is also the option to contact in the UK Samaritans either via email or phone https://www.samaritans.org/how-we-can-help/contact-samaritan/

    If you are not in the UK do search online for your local/regional/ national support services. As Carol says – do not suffer in silence.

    Wishing you the very best during this turbulent time

    My very best wishes

    Shirley Widdop (Myelopathy Support on FB Admin)

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