Welcome to the RECODE-DCM network!
Myelopathy.org is leading the fight for people with Degenerative Cervical Myelopathy (DCM), to build a world where people can live their lives free of the life-limiting impact of DCM and have a healthy, active, and independent future. The RECODE-DCM network is the research arm of Myelopathy.org.
The RECODE-DCM Incubators: Progress Report
The goal of our incubators is to resolve the Top 10 Research Priorities that were identified through the AO Spine RECODE-DCM study, in which AO Spine and Myelopathy.org brought together all key stakeholder groups to pinpoint the most crucial questions in DCM. We are forever grateful to AO Spine for boosting the momentum of the DCM research field in this way. Our international, multidisciplinary incubator teams meet regularly via Zoom to conduct research and share expertise. We sincerely thank all of our incubator members for sparing their time and energy to propel the incubators forward.
The Diagnostic Criteria Incubator is working on the world’s first set of reliable diagnostic criteria for DCM. Early diagnosis is the key to optimal outcomes. At present, people with DCM wait an average of 2 to 5 years for a diagnosis; however, treatment within 4 months is associated with the best chance of a full recovery. Our incubator’s mission is the publication and widespread uptake of robust diagnostic criteria. Papers have been submitted for publication and are now under review.
The Natural History Incubator is working to understand how DCM begins and develops. The group is looking at management of asymptomatic spinal cord compression, and identifying the factors associated with progression into symptomatic DCM. Comprehensive knowledge of the disease course will open avenues for effective intervention.
The Perioperative Rehabilitation Incubator is examining non-operative aspects of DCM management and developing an enhanced recovery pathway for patients prior to, during, and after surgery. The growing team is bringing in fresh perspectives from diverse disciplines, to identify the required domains of care and create best-practice frameworks.
For a deeper dive into the incubators, tune in to the March, April and May 2023 episodes of our podcast, Myelopathy Matters.
If you would like to join an incubator, please email recode@myelopathy.org.
Thank You for Your Interest in Our Network’s Scientific and Clinical Initiatives
RECODE-DCM by Myelopathy.org provides a unique multidisciplinary ecosystem for the global myelopathy community. We unify lived experience and professional experience, for research with relevance.
Please share this newsletter with your friends and colleagues, and encourage them to join our network.
For enquiries, please email recode@myelopathy.org.
#MyelopathyMatters
Ben Davies and the RECODE-DCM Team