Coffee with Esther (April 2024)

Stepping into the Night

On the Coffee Breaks this month we’ve been talking about what activities we’d love to try or do again and people wanted to try many types of things!

Doing something you’re passionate about infuses your life with purpose and joy. Whether it’s a hobby or a cause you believe in, engaging with your passion fuels your creativity, resilience, and overall wellbeing. It enriches your life with fulfilment and satisfaction. Jumping in and pursuing something you truly desire, even with myelopathy, requires courage and adaptability. Despite the challenges posed by the condition, seizing opportunities and following your passions can bring immense satisfaction and a sense of accomplishment. It may involve modifying your approach or seeking support.

What is my passion? Music! I love every kind of music – from opera to rave and everything in between – so I decided I wanted to try and go out and feel the bass running through my body again.

The Myelopathy Warrior’s Journey to the Nightclub

Home nightclub in Lincoln is a very special place for my husband and me as it was the place where we got married in 2016. They were doing a new event called “Home Before Dark”, which offered a unique daytime experience, inviting guests to dance, socialise, and unwind between the hours of 3pm and 8pm.

Home Before Dark Poster
Performer Rozalla

In a world where the dance floor pulses with energy and laughter fills the air, venturing into a nightclub can be an exhilarating experience, but for those living with myelopathy, such an outing may seem daunting, if not impossible. Well, I stepped into the nightlife scene for the very first time since 2016 and discovered a newfound sense of joy and freedom amidst the flashing lights and pulsating beats.

My decision to visit a nightclub was not taken lightly. Fears and doubts lingered, whispering tales of discomfort, exhaustion, and uncertainty. Yet, fuelled by a desire to reclaim a sense of normalcy and independence, I bravely embarked on this journey, determined to embrace the unknown with an open heart and mind.

I stepped through the doors of the nightclub and a wave of excitement and anticipation washed over me, Surrounded by the vibrant atmosphere and infectious energy of the crowd, I felt a sense of liberation unlike anything I’d experienced for a very long time. With each beat of the music and every twirl in my wheelchair on the dance floor, I found myself immersed in the joy of the present moment, setting aside worries and limitations to fully embrace the experience.

I discovered the power of connection – the simple yet profound act of sharing laughter, smiles, and wheelchair dance moves with newfound friends. In these moments of shared joy and camaraderie, I felt a sense of belonging and acceptance that transcended the boundaries of my condition, reminding me that I’m not defined by my limitations, but rather by the courage and resilience that lies within me.

The nightclub excelled in accessibility for disabled individuals; they provided dedicated disabled toilets and reliable lifts to ensure easy navigation throughout the venue. Moreover, the staff were exceptionally helpful and accommodating, readily assisting me with any needs I had. I felt included and welcomed.

The night eventually drew to a close and my husband and I bid farewell to our friends. The taxis arrived at 8 pm, and on our way home I felt a newfound sense of empowerment and possibility. What began as a journey into the unknown had blossomed into a transformative experience of joy, connection, and self-discovery. Though the challenges of myelopathy may linger, I now know that I possess the strength and resilience to navigate life’s adventures, both on and off the dance floor.

This massive adventure served as a powerful reminder that, even in the face of adversity, joy and freedom can be found in the most unexpected places. Whether it’s a night out on the town or a quiet moment of reflection, we can embody the spirit of resilience and courage that defines the myelopathy community; a spirit that continues to inspire and uplift us all. So here’s to all myelopathy warriors who dare to dance through life with grace, courage, and unwavering determination.

Virtual Coffee Breaks

The Virtual Coffee Breaks can be a fantastic place for finding support and uplifting conversations. We provide a space where people can share challenges, receive encouragement, and benefit from the positive energy of others.

If you’re facing a challenge and need guidance or advice, seeking support from friends during the Virtual Coffee Breaks can be incredibly helpful. You can share your challenge and receive valuable insights, perspectives, and encouragement to help you navigate through it effectively.

To find out how to join the Coffee Breaks, please see the posts within the Support Group on Facebook. The upcoming dates are as follows:

  • 11th April at 2pm GMT
  • 18th April at 6pm GMT
  • 2nd May at 11am GMT
  • 9th May at 2pm GMT
  • 16th May at 6pm GMT

I hope to see you there.