Who We Are
The Origins of Myelopathy.org
Myelopathy.org was founded in 2017 as a collaborative information and support initiative bringing together the work of Dr Mark Kotter, academic neurosurgeon and specialist in complex spinal surgery, and Dr Benjamin Davies, trainee academic neurosurgeon and Research Fellow, with the prolific Myelopathy.org Support Group on Facebook founded by Iwan Sadler who has been living with Degenerative Cervical Myelopathy (DCM) since 2014.
Mark and Ben initially set up Myelopathy.org to better engage with people who have DCM as they had both become interested in DCM through their research into regenerative medicine and development of NHS care pathways. Iwan Sadler was diagnosed with DCM in 2014 and feeling increasingly alone and frustrated by the lack of information and support he developed his own awareness campaign and one of the first Facebook community pages for DCM. It was inevitable the three should meet and their combined goals to raise awareness, increase support and improve diagnosis and treatment pathways led to the creation of Myelopathy.org. Registered as a charity in June 2018 our charitable objectives are to advance health and education in all aspects of DCM in particular by:
- Immediate Diagnosis: Helping people and health professionals recognise the symptoms.
- Timely Treatments: Driving research into new and innovative treatments that are timely and effective.
- Patient Support: Building an international support community for people living with DCM.