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Online Surveys

Help Myelopathy.org solve the CSM mysteries - Share your CSM experience

Myelopathy.org works closely with researchers to pick apart the mysteries of CSM and help improve the lives of those affected. The experiences and opinions of patients, carers and professionals helps improve our understanding and drive progress.

Below is a list of surveys currently running, for patients, carers and professionals. If you have a few moments to share your experience we would be very grateful.

For Physiotherapists
By University of Cambridge

Does Physio after surgery help recovery? 

The survey aims to provide a broad overview of how patients are affected, the impact of CSM on their lives and the types of treatment they have had.

For Carers
By University of Cambridge

How does CSM affect me?

As a chronic disease, CSM sufferers often rely on the support of others. This can have a negative impact on those ‘supporters’. This survey aims  to measure this impact for the first time.

For Patients
​By University of Cambridge

Pain and CSM

May patients with CSM report pain, but this experience and its impact is unknown. This survey aims to find out more about pain in CSM to support much needed research in this area.

Completed Surveys

1. How bad is CSM? Developed by the University of Cambridge, this survey was completed by over 1000 patients with CSM. We look forward to hearing the results. Thank you for all who participated.


2.What came first? Developed by the University of Cambridge, this survey involved multiple rounds of surveys to identify all the ways in which CSM can affect you, and to identify if there are any common symptoms that come first and could help accelerate diagnosis. We look forward to hearing the results. Thank you for all who participated.