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The House of Lords
May 7, 2019 Official Launch

The Event

On Tuesday 7th May 2019 we held our official launch to the public and professional worlds at the House of Lords in London. The launch was hosted by the Lord Patrick Carter of Coles and his wife Lady Julia Carter of Coles and we are very grateful to them for all their support. We welcomed representatives from NHS England, NICE, and the Royal Colleges. Also, in attendance were representatives from various charities, a large number of clinicians from different disciplines who treat CSM, and also politicians and policy makers. We were also very happy that the Myelopathy Student Society could join us as they represent the next generation who will be helping us Make Myelopathy Matter. However, most importantly, we were very proud that so many people with myelopathy were able to join us as we know how much effort this takes so an especially big thank you to all of you.

From the talks given on the night the audience learned about the under-represented problem of CSM and of our efforts as a charity to tackle it. You can read the full transcripts of the talks given on the night by clinking on the link below. Most importantly, we heard from people who suffer with myelopathy who described their daily struggles and explained how and the Myelopathy Support Facebook Group set up by Iwan Sadler have helped them.

This evening would not have been possible without the generous support of our sponsors, Lord and Lady Carter of Coles, Mrs Weslie Janeway, bit bio and MediciNova, to whom we are eternally grateful.

We hope you enjoy reading about this memorable and successful evening and looking at the pictures taken on the night in our newsletter below. Don’t forget to answer our poll and let us know your views. We look forward to hearing from you. Together we can Make Myelopathy Matter!

Dr Mark Kotter - speaking
Dr Mark Kotter (The University of Cambridge). Photo courtesy of Toby Roney.
Michael Ferhlings on speakers podium
Professor Michael G Fehlings (University of Toronto). Photo courtesy of Toby Roney.

The Newsletter

For highlights of the event, latest news from founders and speakers, pictures and more exciting details, read the official launch newsletter.

Can You Help Answer Our Question?

Research has shown that timely, appropriate surgery can help reduce further deterioration in symptoms and quality of life. We think a specialised care pathway, for suspected or confirmed myelopathy, could transform disability tomorrow.

Should an optimised care pathway be our focus?

Awareness of Myelopathy has never been higher has an important mission. Myelopathy affects too many people and causes too much suffering. Simple changes, such as increasing awareness, earlier diagnosis, and treatment could prevent significant suffering. Future research will be able to identify who is at risk, guide medical decision making, and improve the lives of those affected.
Trustee & Founder

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