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A Message from Everyone at Myelopathy.org

We are living in unprecedented times which is making many of us feel quite scared, nervous and anxious about our health as well as that of our families and friends.

We wanted to reassure you that Myelopathy.org is run by a dedicated group of volunteers based all around the UK and therefore we are used to working with each other remotely. This means that during these uncertain times we can continue to work together in the way we are used to around our various family and other commitments, to raise awareness of Cervical Myelopathy. That said, due to the current situation many of these activities will likely slow in the weeks and months to come, or will be postponed.

In the meantime, keep talking to each other on our support group, keep in touch with your family, friends and neighbours, and lean on them for help and support. Stay positive, and try to meet people for a virtual cup of tea online instead. Please don’t suffer in silence, we’re here for you.

If there is a question we can help with, get in touch and we will try to seek some clarity for you.

Stay safe, with very best wishes,
Everyone at Myelopathy.org

Stay positive and enjoy this beautiful wildflower meadow in the summer photo
Photo by Kristine Cinate on Unsplash

Updated Information on Coronavirus (COVID-19)

THIS SUMMARY IS SUBJECT TO CHANGE AT SHORT NOTICE AS THE GOVERNMENT RELEASES ITS OWN UPDATES – THIS SUMMARY WAS LAST UPDATED MONDAY 23RD MARCH 2020

 

Dear Friends,

These are extraordinary times; coronavirus (COVID-19) represents a nearly unprecedented challenge to our healthcare systems and a danger to all of us.

An important question that we need to contemplate is how will coronavirus (COVID-19) affect individuals with Cervical Myelopathy?

At the moment, there is no data related to coronavirus (COVID-19) and Cervical Myelopathy. The latest Public Health England guidance states that, in addition to people over 70, anyone with a chronic neurological condition is at increased risk of a severe illness from coronavirus (COVID-19).

I think we need to err on the side of caution and consider individuals with Cervical Myelopathy to potentially be at an increased risk. I therefore urge you to read and follow the latest advice and guidance published in your home countries.

The UK Government and the NHS provides comprehensive information relating to the coronavirus (COVID-19) outbreak and in particular is urging any individual in a group which is identified as being at increased risk of a severe illness from coronavirus (COVID-19) to follow the social distancing advice. In addition, the US Centre of Disease Control provides the following guidance for people at increased risk which you may find useful.

Our primary concern is everyone’s health and well-being.  We understand that there is a lot of uncertainty at the moment and that this can be unsettling.  We will provide as much information as we can, as soon as we can.

Our staff are working from home so please do get in touch via email or on our Facebook Support Group.  We are continuing to work to support the Cervical Myelopathy community in these challenging times.

Stay safe and we will be in touch again with further updates.

With best wishes,
Dr Mark Kotter (Founder of Myelopathy.org)