info@myelopathy.org

Visit Us On FacebookVisit Us On YoutubeVisit Us On TwitterVisit Us On InstagramCheck Our Feed

About

Who we are

Myelopathy.org is a non-profit organisation founded to raise awareness of cervical spondylotic myelopathy and support patients, carers and professionals who live and deal with the condition. ​

Our charitable objectives are to advance health and education in all aspects of Myelopathy in particular by:

1. Supporting and funding scientific research into all aspects of Myelopathy

2. Raising awareness and understanding of the condition

3. Supporting and promoting improved outcomes for patients by bringing together patients, carers and healthcare professionals

The origins of Myelopathy.org

Myelopathy.org was founded in 2015. It was the brain child of Dr Mark Kotter, who with the help of Dr Ben Davies, developed the initial information and support platform. At around this time, Iwan Sadler, a CSM patient, frustrated by the lack of support, had founded his own Facebook Support group. Given their common goals, Iwan joined Myelopathy.org to set up and lead Myelopathy.org/support, a support community for patients by patients.

In the time that has followed, Myelopathy.org has continued to grow. The community is made up of members from all over the globe, many of whom have given up their time to promote awareness and support our goals; individuals like Delphine have come forward to add their expertise.

But we still have a long way to go and we are always looking for more help! If you would like to get involved, please get in touch.

The Myelopathy.org Team

Myelopathy.org is proud to have such a passionate, hard-working and accessible team to lead the charity.

The growth and success of Myelopathy.org is based upon volunteers from around the globe, in particular we are privileged to have a number of volunteers developing and maintaining key components of the organisation.