Research
Despite CSM being known for nearly 100 years, many questions remain unanswered. Though our understanding of CSM is growing, it is still limited and the treatment of CSM remains controversial.
Myelopathy.org is committed to supporting researchers answer these questions. If you have a research idea or project and would like support from Myelopathy.org, please get in touch. We are waiting to hear from you.
Alternatively, if you would simply like to share the highlights of a recent article or talk about what you are working on at the moment, we would be delighted to work with you to create a BLOG Post. Our community is always interested in keeping up to date with the research field.
Active Myelopathy.org Research Projects
If we can help support your research, please get in touch
Myelopathy.org is currently supporting three international research projects:
The first regenerative medicine trial for
myelopathy.
a NIHR James Lind Alliance research priority setting
partnershiping partnership, to define the research questions that need answering.
RECODE-DCM is a consensus process to improve research efficiency in DCM, you can find more information about it here.
Myelopathy.org : Our research in print
How Can You Get Involved?
When patient and the public are consulted in the design and delivery of research, its relevance and impact is higher!
Myelopathy.org and its community is here to support your ‘PPI’ needs.
Health surveys are an important research tool. Myelopathy.org can help facilitate your research survey around the globe.
Share your CSM experience and help us solve the CSM mysteries!
Donate now, to help support future Myelopathy.org research projects.
What happens to my data in research?
Myelopathy.org is committed to responsible research to advance our understanding of myelopathy, but these projects require your involvement to succeed.
Research relies on individuals to share their experiences but, individuals are often nervous about sharing their personal information and uncertain how it is used.
The following video has been produced by Connected Health Cities and The Farr Institute, who worked with patients and members of the public across the UK to understand the questions people have about patient data being used in research and produced a short film which explains how universities in the UK are using patient data to improve health and care, and the measures they must go to to ensure that your data remains safe and protected.
Myelopathy.org is committed to responsible research and safe guarding our community. All supported projects must adhere to our code of conduct, have appropriate regulatory approval and be approved by our research committee.
Myelopathy.org adheres to the Health Research Authority policy for good practice in the management and conduct of health and social care research in the UK. If you have any further questions, queries or concerns about any of our research projects, please get in touch.
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